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What Lifestyle Adjustments Have You Made To Better Manage Your PNH? πŸƒβ€β™€οΈπŸ₯—

A myPNHteam Member asked a question πŸ’­
San Francisco, CA

Share the changes you’ve implemented in your daily routine, diet, or exercise that have helped you manage your PNH symptoms.

Comment below with your lifestyle adjustments and let’s support each other in improving our quality of life! πŸ’¬

August 16
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A myPNHteam Member

With the PNH, Anemia X3 and Thrombocytopenia I've had start eating more protein and it doesn't have to be read meat chicken has lot of protein as well as veggies. I've also found the more I get up an exercise like walking not sweat breaking the better I do as my doc helped me realize that sweat breaking actually increased thrombosis cause of the stress on the body which lowers blood. So I've learned to balance with out increasing stress. There's good an bad stress but I've got to keep both down as they both can increase thrombosis

December 10
A myPNHteam Member

Hello I am alpstic anemia PNH pesana please help πŸ™

August 17

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