Connect with others who understand.

Sign up Log in
Quick Links
Q&A Resources Treatments A-Z Help Center Guidelines Crisis Accessibility
About myPNHteam
What is This Site Terms of Use Privacy policy
Powered By
Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Lifestyle Adjustments Have You Made To Better Manage Your PNH? πŸƒβ€β™€οΈπŸ₯—

A myPNHteam Member asked a question πŸ’­
San Francisco, CA

Share the changes you’ve implemented in your daily routine, diet, or exercise that have helped you manage your PNH symptoms.

Comment below with your lifestyle adjustments and let’s support each other in improving our quality of life! πŸ’¬

August 16
β€’
Be the first to like/hug
A myPNHteam Member

Hello I am alpstic anemia PNH pesana please help πŸ™

August 17

Related content

View All

What Self-care Practices Help You Manage PNH Best? πŸ›πŸŒΏ

A myPNHteam Member asked a question πŸ’­
San Francisco, CA
September 13

How Do You Manage PNH-related Pain Or Discomfort? πŸ€•πŸ’Š

A myPNHteam Member asked a question πŸ’­
San Francisco, CA
October 10

My Partner Has PNH And Has Covid Can He Still Get His Treatment?

A myPNHteam Member asked a question πŸ’­
Leesburg, FL
February 3
6 Alternative Treatments for PNH: Are They Safe and Effective?
Where Hemolysis Happens in PNH: Extravascular (EVH) vs. Intravascular (IVH)
11 Paroxysmal Nocturnal Hemoglobinuria Treatment Options
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in