Quick Links
About myPNHteam
Powered By
What Lifestyle Adjustments Have You Made To Better Manage Your PNH? 🏃♀️🥗
Share the changes you’ve implemented in your daily routine, diet, or exercise that have helped you manage your PNH symptoms.
Comment below with your lifestyle adjustments and let’s support each other in improving our quality of life! 💬
With the PNH, Anemia X3 and Thrombocytopenia I've had start eating more protein and it doesn't have to be read meat chicken has lot of protein as well as veggies. I've also found the more I get up an… read more
I Bet U 10$
Can I Smoke Real Quick
No
My Partner Has PNH And Has Covid Can He Still Get His Treatment?
He hasn't been officially confirmed with Covid but I have and he has symptoms
For someone with paroxysmal nocturnal hemoglobinuria (PNH) who has contracted COVID-19, it's crucial to consult with their healthcare team. Treatment plans may need adjustments based on their current… read more
How Everyone Doing Today
Hi I am blessed with another day doing well, I pray all of you are as well
The First Time You Have A Problem Is If You’re Going Through Something And You’re Trying Something New
What Causes Pñh
What Causes Pnh
What is pnh blood dieàse
In my situation my Doctor has taught me that most often it develops in the body when out body stops creating the "pigga" gene the protein coating on the outside of of our RBC . As a result the body… read more
If You Have PNH ,and In My Case Twice I've Had A High D- Dimer Test Results To Be High .
Who answers these questions??
Is this normal
Hi every one
I have question and hope I don't sound stupid? At my consultation last week I advised my consultant that often when… read more
Are There Any Assistance Out There To Help With Bills And Or Groceries..
Try the web site Benefits.gov
Sign up for free!
Continue with Facebook
Sign up with your email
