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Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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I Have Been Taking Ultomiris For PNH Since The End Of August 2025. A Lot Of My Symptoms Of PNH Have Disappeared.

By A myPNHteam Member • 1 answer

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Why Is My Hair Falling Out So Bad

By A myPNHteam Member • 1 answer

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What Treatment Do I Need To Do To See If I Have Any Blood Clots Or Anything With My Heart That Can Be Seen Or Spotted As Soon As Possible

By A myPNHteam Member • 2 answers

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Has Anyone Else Started Treatment With Ravulizumab (Ulromiris)? How Did You Feel After The First Few Infusions? 🤞🏻

By A myPNHteam Member • 4 answers

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myPNHteam is the social network for those living with paroxysmal nocturnal hemoglobinuria. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for paroxysmal nocturnal hemoglobinuria. myPNHteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

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