How Do You Manage PNH-related Pain Or Discomfort? π€π
Pain and discomfort can be part of living with PNH. Share the strategies or treatments that help you alleviate symptoms and improve your day-to-day well-being. Letβs support each other by exchanging helpful tips! π¬
What Treatment Do I Need To Do To See If I Have Any Blood Clots Or Anything With My Heart That Can Be Seen Or Spotted As Soon As Possible
My Hematocrit Is In The Normal Range, But I Still Experience Fatigue And Shortness Of Breath. Is This The Disease Or Old Age? Thanks!!
Has Anyone Else Started Treatment With Ravulizumab (Ulromiris)? How Did You Feel After The First Few Infusions? π€π»
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