Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Personal Assistant What is This Site Help Center Crisis
Powered By
Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Manage PNH-related Pain Or Discomfort? 🤕💊

A myPNHteam Member asked a question 💭
San Francisco, CA

Pain and discomfort can be part of living with PNH. Share the strategies or treatments that help you alleviate symptoms and improve your day-to-day well-being. Let’s support each other by exchanging helpful tips! 💬

October 10, 2024
•
View reactions

Related content

View All

Can You Have Acid Reflux With A Cough Caused By Pnh.

A myPNHteam Subscriber asked a question 💭
December 2

What Treatment Do I Need To Do To See If I Have Any Blood Clots Or Anything With My Heart That Can Be Seen Or Spotted As Soon As Possible

A myPNHteam Member asked a question 💭
Belton, TX
November 7

My Hematocrit Is In The Normal Range, But I Still Experience Fatigue And Shortness Of Breath. Is This The Disease Or Old Age? Thanks!!

A myPNHteam Member asked a question 💭
Hernando, MS
October 24

PIGA Mutation and PNH: Do Genetics Matter?
How Flow Cytometry Works for Diagnosing PNH
Is It PNH or Something Else? 6 Differential Diagnoses To Rule Out
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in