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Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Test

A myPNHteam Member asked a question 💭
San Francisco, CA
How Is Paroxysmal Nocturnal Hemoglobinuria Diagnosed? Read Article...
A myPNHteam Member

I have learned it can be diagnosed in different ways based on different tests and body situations
For me it was my labs, bone marrow biopsy an when I told the Dr that my urine was Red that was one… read more

What Causes Pnh

A myPNHteam Member asked a question 💭
Aberdeen, NC

What is pnh blood dieàse

A myPNHteam Member

In my situation my Doctor has taught me that most often it develops in the body when out body stops creating the "pigga" gene the protein coating on the outside of of our RBC . As a result the body… read more

I Don't Have One At The Moment

A myPNHteam Member asked a question 💭
Eunice, LA