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Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Has PNH Impacted Your Life?

A myPNHteam Member asked a question 💭
San Francisco, CA
March 23, 2023
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A myPNHteam Member

I feel like it has taken away my trust in others and in a away it took away trust others had in me. Iv been dealing with for so long but no one took me seriously. I'm still going through the process but since December of 2021 iv seen multiple doctors and specialists and I just get sent to more doctors. People thought I was faking it or being over dramatic.

September 13, 2023

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