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myPNHteam Stories: Real Stories From Real Members

Updated on January 2, 2025

1 of 2

Meet Brandi

Brandi is a blood disorder awareness activist with a passion for helping others, inspired by her 14-year battle with aplastic anemia and PNH.

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4 Tips for Taking Charge of Your PNH Diagnosis
2:02 • Watch Video



How Connecting With Others Helps Me Live With PNH

1:29 Watch Video



Meet Brandi: How I Overcome Fatigue and Brain Fog With PN

1:52 Watch Video

2 of 2

Meet Maegan
Maegan is a disabled artist living with PNH. They enjoy painting, writing, and sitting with their cat, Moe, at home in St. Paul, Minnesota.

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From ER Visits to Art: My Journey With PNH
2:11 • Watch Video



How Fatigue Led a Doctor To Diagnose Maegan’s PNH

2:16 Watch Video



How I Navigate a Rare Condition and Keep Dreaming Big

2:03 Watch Video

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