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myPNHteam Stories: Real Stories From Real Members

Updated on August 15, 2023

Meet Brandi Lewis

Brandi Lewis is a blood disorder awareness activist with a passion for helping others, inspired by her 14-year battle with aplastic anemia and PNH.

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Building Your Community: Finding Others With PNH
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Living With PNH: Overcoming Fatigue and Brain Fog
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Meet Maegan Voss

Maegan Voss is a disabled artist living with PNH. They enjoy painting, writing, and sitting with their cat, Moe, at home in
St. Paul, Minnesota.

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A Doctor Who Will Listen: Getting to Diagnosis
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Finding Friends and Dreaming Big: The Importance of Community
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Updated on August 15, 2023

Recent Articles

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Here are four ways to save money on medications.

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You may not get a diagnosis of paroxysmal nocturnal hemoglobinuria (PNH) right away. PNH has symp...

Is It PNH or Something Else? 6 Differential Diagnoses To Rule Out

You may not get a diagnosis of paroxysmal nocturnal hemoglobinuria (PNH) right away. PNH has symp...
Paroxysmal nocturnal hemoglobinuria (PNH) is considered a bone marrow failure disease. Some peopl...

What Is Bone Marrow Failure in PNH? 8 Facts To Know

Paroxysmal nocturnal hemoglobinuria (PNH) is considered a bone marrow failure disease. Some peopl...

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