Quick Links
About myPNHteam
Powered By
1 of 3
Meet Shaquilla
Shaquilla is a Florida-based analyst and mother of two teenage daughters who has been managing her PNH since her diagnosis in 2017.
Watch all 3 videos in this series
Brain Fog, Fatigue, and a Missed Diagnosis: My PNH Story
2:17 • Watch Video
My Long Journey to the Right PNH Treatment
2:38 • Watch Video
PNH Symptoms and Triggers: Habits That Can Help
1:52 • Watch Video
2 of 3
Meet Brandi
Brandi is a blood disorder awareness activist with a passion for helping others, inspired by her 14-year battle with aplastic anemia and PNH.
Watch all 3 videos in this series
4 Tips for Taking Charge of Your PNH Diagnosis
2:02 • Watch Video
How Connecting With Others Helps Me Live With PNH
1:29 • Watch Video
Meet Brandi: How I Overcome Fatigue and Brain Fog With PNH
1:52 • Watch Video
3 of 3
Meet Maegan
Maegan is a disabled artist living with PNH. They enjoy painting, writing, and sitting with their cat, Moe, at home in St. Paul, Minnesota.
Watch all 3 videos in this series
From ER Visits to Art: My Journey With PNH
2:11 • Watch Video
How Fatigue Led a Doctor To Diagnose Maegan’s PNH
2:16 • Watch Video
How I Navigate a Rare Condition and Keep Dreaming Big
2:03 • Watch Video
Sign up for free!
Continue with Facebook
Sign up with your email
Become a member to get even more
