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Questions & Answers

Get practical advice and insights from people who understand

Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Can I Tell If I Have Intravascular Or Extravascular Hemolysis?

By A myPNHteam Member • 1 answer

What Self-care Practices Help You Manage PNH Best? 🛁🌿

By A myPNHteam Member • 2 answers

I Bet U 10$

By A myPNHteam Member

Can I Smoke Real Quick

By A myPNHteam Member • 2 answers
25 questions

Does PNH Aggravate Ones Cancer, In My Case Leukaemia

A myPNHteam Member asked a question 💭
England UK
May 26, 2023
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A myPNHteam Member

And I would like to know if I could have a bit that

August 24, 2023

I Don't Have One At The Moment

A myPNHteam Member asked a question 💭
Eunice, LA
May 19, 2023
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What Has Been The Most Challenging Part About Living With PNH?

A myPNHteam Member asked a question 💭
San Francisco, CA
March 23, 2023
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A myPNHteam Member

I get light headed easily and have to squat down quickly.

September 13, 2023

How Has PNH Impacted Your Life?

A myPNHteam Member asked a question 💭
San Francisco, CA
March 23, 2023
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A myPNHteam Member

I feel like it has taken away my trust in others and in a away it took away trust others had in me. Iv been dealing with for so long but no one took me seriously. I'm still going through the process… read more

September 13, 2023

How And When Were You Diagnosed With PNH?

A myPNHteam Member asked a question 💭
San Francisco, CA
March 23, 2023
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A myPNHteam Member

Hey @A myPNHteam Member - thanks for responding! Were you diagnosed by a doctor? How did you know it was pnh?

April 19, 2023
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