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Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What’s One Thing You Wish People Understood About Living With PNH?

By A myPNHteam Member • 1 answer

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How Do You Manage PNH-related Pain Or Discomfort? 🤕💊

By A myPNHteam Member

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What Lifestyle Adjustments Have You Made To Better Manage Your PNH? 🏃‍♀️🥗

By A myPNHteam Member • 2 answers

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Can Ultomiris Or Solmiris Be Passed By Bodily Fluids Contact Such As Seamen? If So Are There Any Possible Side Effects For The Partner

By A myPNHteam Member

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myPNHteam is the social network for those living with paroxysmal nocturnal hemoglobinuria. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for paroxysmal nocturnal hemoglobinuria. myPNHteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

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