Connect with others who understand.

Sign up Log in
Quick Links
Q&A Resources Treatments A-Z Help Center Guidelines Crisis Accessibility
About myPNHteam
What is This Site Terms of Use Privacy policy
Powered By
Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Has Been The Most Challenging Part About Living With PNH?

A myPNHteam Member asked a question 💭
San Francisco, CA
March 23, 2023
•
Be the first to like/hug
A myPNHteam Member

I get light headed easily and have to squat down quickly.

September 13, 2023
A myPNHteam Member

Light-headed

May 7, 2023

Related content

View All

How Do You Manage PNH-related Pain Or Discomfort? 🤕💊

A myPNHteam Member asked a question 💭
San Francisco, CA
October 10

What Self-care Practices Help You Manage PNH Best? 🛁🌿

A myPNHteam Member asked a question 💭
San Francisco, CA
September 13

My Partner Has PNH And Has Covid Can He Still Get His Treatment?

A myPNHteam Member asked a question 💭
Leesburg, FL
February 3
6 Alternative Treatments for PNH: Are They Safe and Effective?
PIGA Mutation and PNH: Do Genetics Matter?
8 Complications and Conditions Associated With PNH
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in