How And When Were You Diagnosed With PNH?
2014
Hey @A myPNHteam Member - thanks for responding! Were you diagnosed by a doctor? How did you know it was pnh?
How Do You Manage PNH-related Pain Or Discomfort? 🤕💊
How Do You Stay Energized Despite Fatigue? ⚡💪
What Self-care Practices Help You Manage PNH Best? 🛁🌿